Today is a swear day.
Today is the day where I swear, sweat, break things, tear things up, throw things around and be generally hurtful and hateful to anyone or anything in my path.
Today I choose violence.
Disclaimer: No need to call the pet authorities or police.
Given what I normally write about, one would think this means that our daughter has relapsed. Your heart sinks. You may even gasp.
Well, you would be wrong. In fact, she is doing her thing and has never looked better. She has two weeks left to go and is trying to get stuff sorted out for when she gets out. You know, life stuff. Like how she is going to live and where she is going to live and, well, stuff!
Today is a swear day because of the bureaucracy that prohibits and restricts her and her support network from accessing the services she requires. Like skyscrapers built around one person who is looking up, trying to find the sky. Every direction they take is blocked with no chance of getting around it.
It’s gross.
She is allowed 10 minutes of phone time a day. I cannot call her. They cannot confirm or deny that she is even a resident there, but will take a message for her (like what? They take messages for every random person whether they are there or not? I don’t think so). They cannot or will not point me to the policy that they are basing this practice on. I have poured through the Freedom of Information Act and they will be hard pressed to give me the section of that legislation they are basing their practice on because it DOES NOT EXIST. It is a global problem when these information legislations are used as a shield to hide behind rather than a tool to protect sensitive information from being leaked. The Release of Information she signed was only giving consent for them to contact other agencies on her behalf. Nowhere does it give her the option to list family members or other natural supports, so, guess what, I’m not on that either.
[Insert all the swear words here].
I have spent the last four days trying to help her gather the paperwork she needs for other government agencies. Simple things like proof of tax returns, identity numbers (SIN, or NI), bank statements. All things she cannot access where she is.
So I send all I have to the nice admissions lady who said she is going to help because that is her job. And I get three missed calls from Robyn when I’m in the shower, so I’m thinking they didn’t get the email. So I call and the nice admissions lady says that she got the email but cannot confirm or deny that what I sent is sufficient because she can’t disclose any information about Robyn to me.
[Insert louder swear words here].
There is no logic. I have been spoken to by this woman, who confirms that Robyn is there implicitly by talking to me about her and acknowledges my email, but then refuses to tell me if what I sent is sufficient to meet the requirements of another agency! Of course, I can’t call Robyn to ask her AND OF COURSE, this woman will not just go and get Robyn so that it can get sorted out right there and then. No, of course not. Because to do that would be helpful and sensible and logical and real.
It would be helpful.
But this is not a world of helpful. This is a world of bureaucratic obstacles for people who are trying to access systems without the resources required to access them (like internet, multi-factor authentication which requires a phone that you are not allowed to have, and documents that only a support network on the outside can get you, if you are lucky enough to have a support person on the outside).
Listen, I know I am a very clever woman. I’m not boasting. I’m clever. I have an aptitude for learning. I have three university degrees. I’ve studied law. I have an excellent memory. I get that. So I think about that before I decide to drown my opponent in a thundering verbal onslaught of legalities, questions I know they can’t answer and statements I know they don’t know anything about.
As I anticipated, I get radio silence when I ask the simple question of how this confidentiality policy (that I’m still waiting for), is being helpful for residents and suggest that it is obstructive. I imagine this policy, if it exists, was never intended to be used the way it is being used, but it is happening.
I want to help you I can’t help you.
I’m no further ahead. I finally dig around and find a government document that has the required information on it. I send that through, hoping that it is good enough. At this point the narrative in my head is that what I sent earlier was not good enough, hence the three missed calls by Robyn, so I’m rummaging through her room to find something else. I’m trying to stay calm but I’m annoyed at her because in the past she insisted her independence with these kinds of documents but never prioritized them because of her addictions.
[Insert swear words in a different language this time, you know, to mix it up].
It reduced me to tears the other week. What was meant to be a simple telephone call to her community psychiatrist to issue a new prescription ended in, well, tears. First I leave a very clear and detailed message. I get a call back from the receptionist who is a notorious non-listener. As I’m re-explaining my request, she is talking over me and therefore cannot hear what I am trying to say. She suggests I just get the pharmacy to send over the repeat. I tell her again there is no repeat. She talks over me and says she can make the call. By now I am crying. Just let me speak to her psychiatrist please who is a lovely woman who I have spoken to before who will sort this out in two seconds. Have her call me please.
The tears worked. She at least stopped talking long enough to listen to the request. She will pass the message on and will get the psychiatrist to call me back. That was two weeks ago. I want to call but at this point don’t want to use my phone in case Robyn tries to call to tell me that she needs something else.
Until you are up against a system, you have no idea how prohibitive and restrictive the system is. How intimidating and surreal. How impersonal, cold and subjective.
Funny how I have been part of this system in my work for so long. In my current role I’m able to challenge that system. It is so ironic how I recently fought for a young person to have access to information that he was being denied because of ‘confidentiality.’ That time I did chew through the statutes, policy, and regulations to tell them that they were hiding behind something they didn’t understand and in fact, this young person was entitled to it. I didn’t get a response to my long, probably snotty letter. But the young person got the information he was looking for. That’s fine by me. Job done.
But Robyn is my young person. And I’m not in the capacity of Advocate with legislation behind me. With this, I’m just a mom. And I can help her I can’t help her, and watch while the systems help her but can’t help her.
Today is a swear day.